Guillain-Barre syndrome

Guillain-Barre syndrome (GBS) is a rare autoimmune disorder that affects the peripheral nervous system, which includes the nerves outside the brain and spinal cord. In this condition, the immune system attacks the myelin sheath that covers the nerves, leading to muscle weakness, numbness, and tingling. GBS can develop rapidly, often following a viral or bacterial infection, and can result in severe muscle weakness. 

The symptoms of GBS can vary depending on the severity of the condition. The most common symptom is muscle weakness, which typically starts in the legs and spreads to the arms, torso, and face. Other symptoms may include numbness or tingling in the hands or feet, difficulty with coordination or balance, and difficulty with breathing, swallowing, or speaking.

Proper treatment can help manage symptoms and prevent complications. The UCSF Neuromuscular Clinic provides comprehensive treatment for patients with various neuromuscular diseases, including Guillain-Barre syndrome. The healthcare team is made up of different types of doctors and other healthcare professionals, who work together to identify each patient's needs and control symptoms. This includes neurologists, pulmonologists, gastroenterologists, nurses, social workers, a dietitian, a genetic counselor, a communication specialist, and occupational, physical, speech, and respiratory therapists. Patients also have access to an orthotist who specializes in braces and other devices to support weak muscles and joints, as well as representatives from local patient advocacy organizations.

 

Learn more about our UCSF Neuromuscular Clinic.

Here are some resources for people with Guillain-Barre syndrome (GBS):

  1. GBS/CIDP Foundation International: This is a non-profit organization that provides education, support, and resources for people with GBS and chronic inflammatory demyelinating polyneuropathy (CIDP), another rare autoimmune disorder that affects the nerves. They offer support groups, information on treatment options, and advocacy efforts to raise awareness about these conditions.
  2. Muscular Dystrophy Association: The Muscular Dystrophy Association (MDA) offers resources and support for people with GBS and their families. They provide information on managing symptoms, financial assistance, and access to medical equipment and services.
  3. National Institute of Neurological Disorders and Stroke: This is a division of the National Institutes of Health (NIH) that conducts and funds research on neurological disorders, including GBS. They offer information on the latest research, clinical trials, and treatment options for GBS.
  4. American Autoimmune Related Diseases Association: A non-profit organization that provides support, education, and advocacy for people with autoimmune diseases, including GBS. They offer resources on managing symptoms, connecting with healthcare providers, and finding community support.
  5. Rare Disease United Foundation: A non-profit organization that advocates for people with rare diseases, including GBS. They provide resources on accessing healthcare, finding clinical trials, and connecting with other people affected by GBS.